Still the same

Well Nicks last upper endoscopy and the camera endoscopy both showed the same results.  Nick still has EE, and it has not gotten better.

Its a mystery, really.  I guess we are lucky he did get so tall and is able to somehow keep going.  His diarrhea and constipation and the stomach issues have not disappeared but I think he just keeps living and ignoring or possibly is used to this now.

They wanted to make sure he did not have Crohns disease, which was ruled out thank god.  But there still are changes in his guts that I dont understand.  I guess its par for the course with EE.

I have been looking into clinical trials, to see if I can get him involved, but I'm thinking he may put up a fight now that he's 20 he doesnt want to be thinking about this stuff.

MILK is one of the culprits!

Nick is now 19, and is slowly noticing what is bothering his esophagus!  He's decided that milk makes his esophagus swell!

Funny he didn't test positive when having allergy skin testing at Children's Hospital!

I hope he notices more as time goes on, needless to say he's cutting out all dairy!

He spent the last 24 hours with a stomach virus that really wiped him out .  He is so skinny!