Forgot, Humira does help his stomach

I forgot to mention this information.  He suffers from extreme constipation and diarrhea, constantly.  We started him on gummy fibers, that seemed to help a little.  His stomach is very sensitive, its been a common thing to go rushing out of a restaurant to make it home so he can go to the bathroom.  This kid hates using public restrooms!  He spent most of his time at home when in school because of this.

So, since taking Humira, his stomach is not as bad.  He seems to be going to the bathroom and the bouts of constipation are less, and his diarrhea as well.

He has been on the Humira since around November of 2014, so we shall see how things go.  I will let you know if this really fixes the problem or we have to start all over again.

I really think this disease is allergy based, his skin and scalp also are affected, along with swelling of his eye lids which we think is from ankylosing spondylitis.   In a perfect world Nick would eat gluten free, and drop a lot of foods from his diet, but being a 21 year old guy makes this really a challenge.  Maybe, just maybe one day I can convince him!    Good Lord he is still so tall and skinny!

Humira seems to be working but...

So his symptoms are better on Humira,  he sees a difference in between shots, he always knows when its time.  His symptoms re-appear close to the day.

The true test will be if he has an upper endoscopy and it comes out negative of eosinophils.   The hard part is trying to get him to do the test now that he is 21.

I can't deny that this stresses me out.  I worry so much it almost makes me sick.  When will they have a treatment for this awful disease?