Nick still has EE. We are still battling high's and lows of swallowing issues, and the diarrhea and constipation that go in cycles. He's dealing with a shattered calcaneus right now, had one surgery, and is having another next month to remove the metal plate and 8 screws put into his foot to keep it together. Once this is complete we can focus again on the EE.
Interesting thing happened, I was helping out someone, long story. But the woman I was speaking with turned out to be a rheumatologist, working for Amgen. And ironically enough is working on creating a treatment for EE. So there is hope, coming soon!
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