Humira was started

Its going to take time to see results, but Nick had his 2nd shot of Humira this past Tuesday.  When he's been on it for a while,  he will need another upper endoscopy to see if the EE has calmed down at all.

I may be repeating myself, but we've noticed some food reactions.  I made stuffed pasta shells with ricotta cheese, etc.  He said he ate a shell and his throat swelled up, he felt it happening.   I stopped buying regular milk, now its only Organic, but we may switch to another option like the almond beverage.

Certain foods make his throat swell, which is interesting.  He's still very skinny,   He's about 6 feet tall and 126 pounds.  Sometimes I can't focus on this, its all too overwhelming.  Its been a long road, since he was a baby.  The doctors said I was basically, nuts.  I knew when his baby teeth erupted, and looked like little pieces of chalk there was a serious problem.  Then came the endless days and nights of agony with stomach pain & not being able to eat.  Once he was given some medicine he was able to start eating again, and I am thankful I decided to defy the doctors somewhat and give him whatever he wanted to eat.  My husband was so mad at me, he'd be eating candy bars, like a Snickers bar, or pizza, anything he wanted, at any time.  I mean the kid was literally starving to death, and was SO SMALL!  So tiny,  and weighed so little it did not seem even possible...he was a big baby, 9 pound wonder!

We still struggle with him eating, he doesn't like to.  He has issues with going to the bathroom.  Its a wild life, sometimes he does not like to leave the house in fear he will have to go.  I can't deny its not been fun and it really stresses me out.  I'm literally, the food pusher!  If he's gotta go to an appointment, he won't eat.  He refuses to use a public bathroom.  He was like this while in school too, so the kid spent most of his life at home during those years.  Amazingly he did graduate, but that was not without a lot of work!  There have been times we go somewhere and have to leave, rush home, for him to use the bathroom.  I was told this is part of the EE.  It stinks!   Its happened when we go out to eat, and have to quickly leave.  It is amazing how much we have adjured to, and how his life has changed because of this.  But, he's an amazing kid, now 21 and has a great personality.  I often wonder what his life would be like if I did not allow him to eat anything he wanted, and if he did not grow.  As you can see he's much taller than his brother who is 5 years his senior.   I sure hope they get a treatment together soon, I know Amgen is working on one, and I'm guessing its going to take a long time before we see it at the pharmacy?

he's on the right with the dark glasses.